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January 07 Deaf and Living Between Two WorldsDeaf and Living Between Two Worlds From: Ripon College Days, WI - Sept 15, 2004 From URL: http://www.deaftoday.com/v3/archives/2004/09/deaf_and_living.html Ashley Nuter Since birth, I've never heard a single sound. The more I try to understand the world of hearing, the more confused I become. I aspire to understand the world of hearing and all the things I can't identify with, but the more I have tried, the more confused I have become. In my condition, people would look at me and think I've got it easy due to how I handle my life as a deaf person. I'm here to prove otherwise. Tears have been shed. My anger often emerges when ignorance presents itself. More often than not, I hold my head up and then confront the faces of misunderstanding, hatred, and fear. As many do not realize, I live in between two worlds. One world belongs to the non-deaf population whereas the other world belongs to the deaf community. Since childhood, I've not felt accepted by either world. Non-deaf people view me as something lesser due to my disability. Deaf people resent the fact that I interact with non-deaf people. I've never attended any schools for the deaf. I rarely attended any deaf social functions. I attribute it to the fact that I grew up in a community where I had to adapt to a culture that is not of my own. While growing up, I often felt apprehensive as I entered a new classroom. A thousand different thoughts swarmed through my head. I worried about establishing relationships with other students without an ability of communicating in their language. Anxiously, I looked around at other students. They smiled. They didn't know I am deaf just yet. My deafness is often considered an invisible disability. I am considered "normal" until my hands start moving. Suddenly, several students walked up to me and their lips began moving in a rapid pace. Unable to reply to their casual conversation, they realized that I am different. It is usually how it goes on the first day of school. I am often told that I am not like hearing people because I am unable to hear. Some people made assumptions about me. More often than not, when I enter a classroom for a first time, professors are uncertain how to deal with my disability. The task lies upon my shoulders to adapt for them to become comfortable with my deafness. Unfortunately, it is not easy for some people to accept me due to their ignorance or fear. The experiences I've had in my life brought numerous valuable lessons. I try to forget the negativity I had gone through by remembering the important principles in my life. Rather than allowing my deafness to become a limitation, I've always explored different ways to push the boundaries. On the other hand, it can be quite difficult when I run into the deaf crowd. Every time I told them about my background, I expected them to applaud my efforts in trying to make a difference in a hearing world. I was wrong. They would ask me all "the questions." Why am I neglecting my culture? Why am I so much like hearing people? Why am I living in a non-deaf people's world? I try to explain my perspective to deaf people. Unfortunately, a scratch on the surface couldn't break through the density of the biases. Every time I comment on something regarding the hearing culture, the eyes of the deaf community automatically look down upon me. I've been stuck in between both worlds. I am not accepted by neither hearing nor deaf people. So what does that make me? For a short while I pondered, dreading what was out there in the real world then all of a sudden, it came to me. Rather than dissecting the differences, I try to see the similarities. I realized there are more similarities than dissimilarities between the two cultures. It bought me understanding of each perspective. I no longer feel out of the place. I have formed a bridge between both worlds. I only hope someone would have courage to walk over into the world they have never dreamed of. January 03 John Williams' Column: Deaf Americans Have Contributed to the Country’s History John Williams' Column: Deaf Americans Have Contributed to the Country’s History December 16 Cochlear Implants (C.I.s)Back in the late 1970s, I remember my mother asking my ear doctor about getting a cochlear implant for me. At the time, they were telling about it on the news. The doctor said he didn't think so because I had a little bit of useful hearing that my powerful hearing aids picks up, and it (was at the time) experimental. That was the first time I learned what a cochlear implant was, and I was only a kid then. For an "introduction" on cochlear implants, click here. Today, cochlear implants have come a long ways, and it is now FDA approved. CIs are now more advanced, and has improved since the experimental stage in the 1970s. I have met many cochlear implant patients online who are very happy with the devices. One of my high school teachers, who is deaf, now wears a cochlear implant himself. :-) Getting a CI is not like wearing hearing aids or even glasses....it takes patience, practice listening (since sounds will sound weird to you at first), and you may have to go back often to get your customized "mapping" so you can be comfortable hearing with your CI. People with CIs are still deaf, since they have to take off their processor at night or before they take a shower or go swimming. Here are some Cochlear Implant links where you can find more information, and to see if you are a candidate, plus seeing the new cool CI devices:
Here's a followup about how a cochlear implant surgery is done: (written by Jaime Berke - Guide of About.com: Deafness/Hard-of-Hearing), from this URL: http://deafness.about.com/od/basicsofcochlearimplants/a/cisurgery_p.htm What Happens at The Hospital? Today's cochlear implant surgery is a relatively minor operation of just a few hours. Children who have had the surgery have been known to go home immediately afterwards, playing normally with minimal post-surgical effects. The surgery has the same normal risks associated with any surgery, and serious complications are rare. Meningitis has been shown to be a risk, and patients should take steps to reduce that risk, such as being vaccinated. The Centers for Disease Control and Prevention offers suggestions for reducing the risk of meningitis on their website. Prior to Surgery: The implant candidate is anesthetized with a general anesthesia. Preparing for Surgery: Some hair is shaved off where the surgery will be done. This is usually a small amount of hair. The area shaved is behind the ear. Making the Cut: An incision is made and the skin and tissue flap is lifted so that the surgeon can drill into the skull bone behind the ear. A receiver is placed into the drilled-out area and an electrode array is inserted into the cochlea. Closing Up: The surgical area is closed up with stitches (a small permanent scar may result) and the head is bandaged. After Surgery: Depending on the length of the surgery and other factors, the patient may either be sent home shortly after surgery or have to stay in the hospital for a short while. Recovery Period: During the recuperation from the surgery, there may be minimal side effects such as temporary swelling. Side effects are minor if they do occur and generally temporary: pain, changes in taste, dizziness, inflammation, bleeding, etc. Photographic illustrations: Plenty of graphic photographs (Not for the squeamish. These photographs show blood and tissue.) of implant surgery are available online. Here are a few:
For myself, when I lose a little bit of more hearing in my right ear, I am considering getting a cochlear implant, because I want to have opportunities and be involved with others. I am already deaf in my left ear, so I may be a good candidate in this ear. Before I get one, I have to go through a battery of tests and x-rays first. :-) This will be in the far future, when I lose a little bit more hearing. To learn more about cochlear implants, go to this site. Nancy
December 12 Deafness and DiversityAt work, I went to a workshop about "Celebrating Diversity", which helped me to learn about other people in different backgrounds and races. This workshop also helps us to respect coworkers' and customers' views and differences, and to accept them. In the deaf world, Gallaudet University (a higher institution for deaf and hard of hearing students...hearing students go there too) provided a website about Deafness and Diversity here. We have Jewish deaf, Christian deaf, Gay deaf, Hispanic deaf and others....there are valuable links in the website that the university had provided about diversity on these type of cultures...so here it is again. Nancy
December 07 Hearing Loss/Deafness WebsitesHearing Loss/Deafness Websites Here are my favorite websites on deafness/hearing loss: Healthy Hearing AllDeaf Captioned Media ProgramCaptioned Media Program I have found this really wonderful website a couple of years ago. This program lets the deaf and hard-of-hearing people borrow CD-ROMs, DVD, or VHS closed captioned movies for free. Oticon hearing aidsOticon Oticon is the brand that is what my current BTE (behind-the-ear) hearing aid is. Oticon hearing aids is one of the best brands, and I have no problems with mine since it was bought new in 2000. Starkey hearing aidsStarkey Starkey hearing aids are the ones I have worn from 1991 to 1999, and I've worn the BTE (behind-the-ear) ones. This is a very good brand, however I had trouble with it at the beginning. Since it has been repaired (under warranty), the rest of the time I worn the Starkey BTE turned out fine. Overall, it is a very good choice to purchase if you need a new aid.
Unitron hearing aidsUnitron I have used Unitron BTE hearing aids from 1986 to 1991 (from my high school years to 21 years old), and this brand works very well. I have used mine with an FM system I wore to my classes in my Sophomore year (the FM system that I wore looked like a big body worn aid..yikes...but that was a long time ago!).
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